Duchenne Nurse Educator

Atlantic, IA, United States

Job Description

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The Duchenne Nurse Educator (DNE) works in a highly visible, dedicated team environment to support health care providers (HCPs), patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process and Sarepta patient support programs. This role develops relationships with HCP\xe2\x80\x99s, patients, and caregivers to support both the HCP\xe2\x80\x99s and the families through their journey on therapy. The DNE also works closely with their cross functional partners to ensure ongoing compliance with therapy. This position will cover Pennsylvania, Delaware, Virginia, West Virginia, and the District of Columbia.

The DNE is assigned to special projects as required, such as providing nurse triage support during 24-hour on-call shift coverage. Triage support utilizes the nursing process to liaise with patient care teams to evaluate patient safety needs over the telephone. On this special project, the DNE serves as a connection between patient care teams and an expert physician with deep Duchenne and precision medicine expertise and provides in the moment guidance to patient care teams, if needed, while adhering to organizational policies, procedures, and guidelines.

Primary Responsibilities Include:
  • Serve as recognized expert on DMD education (Genotype, deletions, disease process, etc.)
  • Stay current on the DMD environment.
  • Collaborate with internal cross functional partners and external partners to ensure ongoing support to HCP\xe2\x80\x99s patients, and families.
  • Educate providers, infusion nurses, patients, and caregivers on Sarepta\xe2\x80\x99s approved therapies and the infusion process.
  • Present to audiences compliantly.
  • Conduct Programs for disease state awareness.
  • Assist to improve infusion experience for DMD patients by providing ongoing support to the infusion nurses and sharing best practices.
  • Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion.
  • Support to patients and families as requested by case manager or health care provider.
  • Attend advocacy meetings and represent Sarepta at industry conferences.
  • Travel to training meetings, medical offices, and home health agencies, as necessary.
  • Other related duties as required.
  • Special projects including triage nursing support:
  • Triage telephone calls from patient care teams requiring medical guidance post treatment during 24-hour on-call shifts.
  • Intake and interpret different nuances of medical information to triage calls appropriately.
  • Communicates and acts as a liaison between patient\xe2\x80\x99s care teams and an expert physician in a confidential manner.
  • Documents calls according to established guidelines (PV reporting).
  • Directs the patient care team to the proper Customer Service Center (e.g., MedInfo, SareptAssist) based on the topic of the call. Requires on call coverage to provide day, night, and weekend coverage.


Desired Education and Skills:
  • Registered Nurse with a bachelor\xe2\x80\x99s degree (BSN/BS/BA) from an accredited school.
  • At least 5 years of relevant experience; Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience preferred.
  • Highly interested in educating on disease state of Duchenne and working with health care professionals to support patients and families.
  • Demonstrates team-based skills working with cross functional partners, both internally and externally.
  • Embraces and adopts modern technologies and techniques.
  • Comfortable presenting in group settings live and virtually.
  • Empathetic and friendly with effective communication skills.
  • Willingness to work as part of a team in a fast-paced environment.
  • Embraces continuous learning/seeks knowledge.
  • Valid driver\xe2\x80\x99s license and in good standing.
  • Requires rotating on call coverage 24 hours/7 days per week.
  • Ability to travel up 60%.

#LI-Remote
The targeted salary range for this position is $132,000 - $165,000 per year. Sarepta is making a good faith effort to be transparent and accurate around our hiring ranges. The salary offer is commensurate with Sarepta\xe2\x80\x99s compensation philosophy and considers factors including, but not limited to, education, training, experience, external market conditions, criticality of role, and internal equity.

Candidates must be authorized to work in the U.S.
Sarepta Therapeutics offers a competitive compensation and benefit package.
Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e-Verify.

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Job Detail

  • Job Id
    JD4255471
  • Industry
    Not mentioned
  • Total Positions
    1
  • Job Type:
    Full Time
  • Salary:
    Not mentioned
  • Employment Status
    Permanent
  • Job Location
    Atlantic, IA, United States
  • Education
    Not mentioned